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  1. Guest Post – Stillbirth

    August 15, 2011 by Lauren

    I went to Boarding School and shared 5 years with a bunch of truly magnificent girls.  One of my best friends at school, Alex, left shortly after I moved to Australia to live with her family in Germany.  Sadly in 2008 I got an email that I will never forget opening.  She is so incredibly brave to share this with us and for that I thank her a million times.

    “Stillbirth- My story”

    By Alexandra Gibbs

    I was 21 years old and 25 weeks pregnant.  It was the morning of the 24th September 2007 and I noticed that my usually active baby wasn’t moving around as much as usual.  It was my first pregnancy and stillbirth is something that never even crossed my mind.  I trotted off to the doctors’ practice that morning as I had a routine check-up anyway and mentioned to the nurse taking my blood pressure that my baby had been unusually quiet that day.  She looked a little concerned and sent me through to see the doctor rather than starting with the CTG.

    As I explained to my Doctor what I had told the nurse she said she was concerned and wanted to do a scan.  She squeezed the gel on my bump and as she ran the transmitter over my belly I knew something was wrong.  She looked at me and told me my baby had died.

    I was immediately transferred to the local hospital so they could induce my unborn son.  I had never been in labour before and I was absolutely terrified.  I had no idea what to expect.  The hospital staff treated the whole process very sensitively and when they offered me the chance to have an epidural I accepted straight away. I was numb with grief and the pain I felt in my heart is like nothing I have ever felt before.

    I had a 16 hour labour with my mum and my partner Barry by my side.  I gave birth to our sleeping baby on September the 25th 2007. When we finally got to meet our little boy I sobbed until I had no more tears left.  His tiny body was so perfect in every way.  He had my nose and my Barry’s chin.  A perfect baby just born too soon.

    The cause of our baby’s death was blood clots in his placenta, reducing his oxygen supply. We were told ‘it was just one of those things’.

    As he was born past 24 weeks gestation and was legally viable we had to register his birth and death with the local authorities and bury him as per German law.  We named him Alfie.  The hardest thing I have ever had to do is walk away from that hospital with empty arms.

    My partner and I went to visit Alfie at the funeral parlour and we got to spend some precious time talking to him, telling him how much we loved him. We gave him a tiny teddy to rest with him. One week after his birth we were burying him in his tiny wooden coffin.  All we had were memories of our gorgeous boy in the form of photographs and prints of his hands and feet.

    I lived in a state of complete oblivion and utter shock for many weeks. I blamed myself for Alfie’s death. I blamed myself for being so naïve and not rushing to the hospital on the morning I noticed his lack of movement.  I stopped eating and dropped several clothes sizes.  Some days I didn’t even get out of bed and others I would just lay on the sofa sobbing for hours at a time.  I just didn’t want to continue my life anymore.  The flowers and cards from family and friends flooded in but no words can comfort any mother who has had to bury her child. I was so angry with myself and with the world. I took a lot of these negative feelings out on those closest to me. I felt like nobody in the world could help me.

    I was of course offered counselling and given information about various support groups around the area of Germany we live in but declined as I didn’t feel able to even begin to talk to strangers about how I was feeling and what I was going through. I eventually got in touch with the UK charity SANDS (Stillbirth and Neonatal Death Society) and began talking to other ladies who had been through similar experiences as me. The work charities such as SANDS do to raise awareness and increase the research into stillbirth and neonatal death is invaluable. However even though it was good to talk to people who knew what you had gone through and were continuing to go through each day I knew my soul would never heal so I stopped visiting the forum.  I felt I needed time to think about things and put them in perspective myself.

    In September 2008, a year after we had said goodbye to our beloved Alfie, Barry and I found out we were once again expecting a baby.  Although no pregnancy or baby could ever let us forget our precious boy it was a light at the end of the long dark tunnel I had been walking in for so long.

     I immediately made an appointment with my doctor and we discussed the antenatal care I would receive during the pregnancy. I was to receive fortnightly scans and extra antenatal tests and was reassured that everything would be done to prevent such tragedy striking twice.  I was referred to a specialist in the hospital in the next city. There I was to be given 4 weekly Doppler Scans to check blood flow through the placenta and umbilical cord.

    Shortly after Barry deployed to Afghanistan on 7 month tour.

    When I was approximately 22 weeks pregnant I was told that everything was fine and was expecting another boy.  When Barry phoned I excitedly told him the news. After treading on egg shells during the entire pregnancy this was news Barry and I needed to hear. I went home feeling relieved and confident about the future, oblivious about what was about to come.

    In January Barry came home on his R and R and a few days later we were shopping in town when I said to him that I had a feeling that something wasn’t right. I phoned my mum who told us to drive straight to the doctors which we of course did immediately. The Dr saw us straight away and gave me a scan. I breathed a huge sigh of relief when she showed us our baby’s heart beat flicking on the monitor. She told me not to worry, that everything looked completely normal and if I had any uncertainty whatsoever then to come back without delay.  We drove home feeling happy once again and Barry returned to Afghanistan to complete the rest of his tour.

    Just a few days after this I phoned my mum and asked her to drive me to the hospital as I had an over whelming feeling that something wasn’t right with my baby. When we got there the specialist gave me a scan confident that everything was fine but history had repeated itself. My baby had died.

    I was sent home and told to return the next day for the labour to be induced. My baby was born sleeping on the 21st January 2009. He had the same nose as his brother. His dad missed the birth and arrived back in Germany on compassionate leave the day after. We named him Joseph Cameron after a dear friend of ours who had passed away just one month previous.

    Once again I found myself in a complete state of numbness and shock as I went through the whole process I had been through just 21 months earlier. We spent time with dear Joseph in the hospital and were advised to allow an autopsy to which we gave our permission. It came back clear of any genetic or physical abnormalities. He died due to blood clots in the placenta, just as Alfie had. We were told that I needed to be tested for blood clotting disorders.

    A few weeks after the birth I had to have what seemed like pints of blood drawn from my arm to be sent away for testing for various blood clotting disorders. They all came back negative so the doctors decided to test for Anti Phospholipid Syndrome (also known as Hughes syndrome) and the results came back borderline positive so more blood had to be drawn for a second test to confirm it. These results came back negative. I was distraught. There was nothing more they could test for that would account for the loss of my babies so we had no answers as to why they died.

     We decided that we wanted to take Joseph home with us rather than have him lay at the funeral parlour as Alfie had so we picked him up from the hospital and took him to the undertakers to get his coffin.  Joseph was buried in the same grave as his brother Alfie so they could be together.

    One thing my father said to me after Alfie was born that has proven so true was that the hardest thing I would have to face would be other people. Returning to work was particularly difficult for me. Some people couldn’t even look me in the eye let alone talk to me. I felt so alone. Like an outcast. I didn’t want them to treat me any differently, just talk to me and involve me in conversations like before. In the end I asked for a transfer which I was granted.

    Late miscarriage and stillbirth is such a taboo topic within society. People don’t know how to approach the tragic subject and find it especially difficult to talk to people who have suffered such a heart-rending loss. I don’t think of myself as a ‘victim’. I just feel so desperately sorry for all the babies who don’t get a chance.  People can only begin to imagine the depth of grief that expectant mothers feel upon knowing about the death of their babies in their own wombs.

    My partner and I married on May 28th 2010 and that summer found out that we were expecting once more! The doctors decided that even though the tests for Hughes Syndrome hadn’t come back 100% positive our best chance of having a successful pregnancy would be to treat me as though it had come back positive so I was immediately given heparin injections that I had to self-inject (with the help from my mum) once a day to keep my blood thin and allowing it to pass through the placenta and umbilical cord without clotting. I was given weekly scans and fortnightly Doppler examinations throughout my pregnancy and when I was 16 weeks pregnant we found out we were expecting out THIRD boy. It was such a joyous moment yet such a sad one at the same time. It brought back such vivid memories yet the hope that we would finally be able to hold a screaming baby in our arms.

    The pregnancy had its ups and downs. I diagnosed myself several times online until I was told off by the specialist. Google can be very dangerous at times.

    At 38 weeks I was given the option of induction purely as a precaution and my husband and I decided that that would be a better option rather than just waiting for spontaneous labour. I told myself if anything went wrong in those last few weeks after I had been given the option to have my baby then I would never forgive myself.

    On the 18th March 2011 we drove to the hospital to be induced and after a 25 hour labour I finally gave birth to our beautiful baby boy Oscar Samuel. It was the most wonderful feeling in the world knowing he was here with us and safe. He gives us so much joy and strength each day and although no baby can ever replace or allow us to forget Alfie and Joseph, having Oscar here is definitely an amazing blessing.

    As I watch him grow and develop I can’t help but wonder how his brothers would look like now. Whether they would have the same smile as him, the same fair hair and big blue eyes?

    We visit Alfie and Joseph whenever we can and as soon as Oscar is old enough to understand we will tell him about his brothers and what beautiful boys they are. We love them so much and won’t ever forget them and how special they are.  One thing that I have learned about the grieving process is things don’t get any easier as the days go by but my life is richer for knowing them and being blessed with being their Mummy. That is something that can never be taken away from me.


  2. Guest Post – Premature Birth

    August 15, 2011 by Lauren

    When I was pregnant with Spud I joined a Birth month group on a baby forum. I met some wonderful women, some of whom I now consider friends. One lady, Lisa Clark, was due about 2 weeks after I was and at 24 weeks went into labour. It sent shock waves throughout our group as we welcomed our first little addition. Here is her story:

    “My experience of Having a Premature Baby”

    by Lisa Clark

    My pregnancy was going well until just before 24 weeks. I started getting tightens which I thought were a bit strange but was told they were Braxton hicks and as Harley is my first I didn’t know any better.  That night I started bleeding and felt unwell, my plug came away so my husband rushed me to hospital where I was told that my baby was coming. They gave me steroid injections to help the baby’s lungs and in the early hours of the morning I had a consultant come and talk to me and my husband to explain what would happen if the baby came now.  Basically they said he would have very little chance and if he was too damaged by the birth they would not help him.  They explained that if he it did make it, he would have problems.  I cried for the rest of the night.

    The next morning I was told they had got it wrong and everything was still holding.  I was kept in for a couple of days and then told to rest at home.   Four hours after arriving home my waters broke.   All hell broke loose; my husband was a mess and didn’t really know what to do.  Luckily my brother was there and he sorted everything out and the next thing I know I’m being blue lighted to my local hospital.  When we arrived we were told that they don’t take babies under 26 weeks and I have to be transferred to Bristol which is 3 hours away.   At this point I was so confused by what was going on and felt totally useless.  The baby was resting on my bladder and I had to have a catheter put into place which is not something I would wish on anyone. The ambulance came and I have never got to Bristol so quickly in my whole life.  The drivers where lovely and Harley still has the teddy that they gave us.

    The team spoke to us again when we got there.  As I was now just over 24 weeks the chances had gone up a bit but I felt so hopeless and hated the fact that my family were so far away.

    I was on a ward with women that were all full term and I hated it.  I hardly left my room; my husband had no clothes and was only just allowed to stay with me because I broke down.  We washed his socks and pants in the sink and sneaked him in the bathroom so he could have a wash as our family weren’t able to get up to give us more stuff for a few days.

    What followed were the worst 3 days of my entire pregnancy.  I was having contractions but they were all over the place.  They would be regular for a few hours then stop.  I was given gas and air but none of the equipment to monitor the contractions worked and the midwives would not check me as they were scared they might give me an infection. I had a student midwife overnight and she couldn’t find a heart beat my worst fears were coming true.  A team came rushing in but the baby was still there just really far down, I was so fed up at this point I just wanted to have my baby and get on with it, I didn’t want to be in limbo any more.

    That morning everything stopped.  My husband and I got a couple hours of sleep before I woke up feeling like I needed to go loo.  Half way there I remembered that I had read it can feel like that when the baby is ready to come.  I walked back to the room and got my husband to get the nurses and begged them to check me.  She ran and got the Consultant who checked and then looked up at me and said “The baby is coming now.”

    Hundreds of thoughts rushed to my head.  Firstly, what the hell?! How is it possible?!   I wasn’t having contractions anymore!    The Consultant said this can happen in very rare cases and I was having a silent birth and was extremely lucky that I was in hospital.  They brought in loads of equipment and I had so many people there.  The midwives had to coach me on what to do and I had no pain relief as there wasn’t time.  Twenty minutes of pushing and Harley came in to the world at 25 weeks gestation weighing just 1lb 10oz.

    I got to see him for a second and then he was whisked away.  They said we could visit in a couple of hours but they needed to set everything up.  Being 25 weeks pregnant when he was born had increased his chance of survival to 40% but the next 48 hours were critical.

    Our lives were turned upside down.  Straight away we had to start making decisions over his care. When I first got to see him I had never seen a baby so small.  He was perfect – 10 fingers,  10 toes, everything was there but with so much equipment and things beeping all the time, I couldn’t believe that he could make it. I hoped with all my heart he would.

    I was moved on to a postnatal ward but there was only one other mother to a preemie on our wing.   I was there for two weeks and it was a living hell.  I got to see all these women with their new babies going home and I knew we wouldn’t be able to do that for a long time. I didn’t talk to any of them, god knows what they must of thought but I couldn’t face it.

    I went to see Harley all the time and I got shown how to express milk so he could have some of it. I got to hold Harley two weeks after he was born.  It was so wonderful but it was also very difficult as he was surrounded by wires and tubes.

    We then were allowed to start taking over some of his care, like washing him, changing him, and feeding him through his NG tube.   Harley was amazing he went from strength to strength.  He was always the one making trouble and coming out of his little doughnut that they put him in.  I remember watching him pull the leads off of his chest and throwing them at the nurse checking him over.  I thought to myself my god what are me and my husband in for when he gets bigger.

    That week another baby in the unit died.  It was such a shock because it was born at an older gestation and a better weight than Harley.  It was then that I truly understood how vulnerable Harley actually was and that every day with him was a blessing.

    We starting taking more photos and dressing him and made sure that everyone was so careful around him. My husband was amazing.  He was my rock he stayed with me as much as he could.  If he wasn’t able to, my family came up and saw us.  After we had been there for about 5 weeks the girl I was in the ward with was able to take her baby home, I was happy and really sad as I missed her so much. My friends were great but no one really understood what I was going through.  Nearly all of them had been blessed with normal births and healthy babies.

    Then we got the news Harley was finally able to get transferred back to Cornwall after 7 weeks in Bristol. The journey took 8 hours as they have to be so careful with him.  At least now he was closer to his family and I could live at home again.  It was really surreal and it took me a few days to get used to it. The house felt so empty.  All the baby bits were ready but still no baby.  He continued to make great progress and finally the word “home” was mentioned on the condition that we learned to do all his medical care.  We jumped at the chance as we had done a lot of it towards the end in Bristol anyway and I was desperate to have our baby at home with us where he belonged.   After 11 weeks in hospital he came home.  My husband and I were both terrified.   We had gotten so used to being helped by all the staff and the medical equipment that we couldn’t believe that we now had to do this on our own. That was when I had my breakdown.  All the strength I had just went and I could barely cope with anything.  I forgot what day it was and went around in a daze.

    Whilst in hospital Harley had a total of 5 blood transfusions, loads of tests, scans, medication you name it. They told us that babies born before 27 weeks rarely come out of the experience untouched and to be prepared for whatever the after effects would be.

    Harley started seeing doctors pretty much straight after he left hospital and he was put on more medication. I went to mother and baby groups but Harley was older yet so much smaller and I got so fed up at the questions so I left that world behind.  The health visitor was nice but had never dealt with a baby as early as Harley and most of the rules didn’t apply to him. I felt very alone for a long time. Harley didn’t meet any of the normal milestones and we started seeing a physio to help, then he wasn’t eating properly the list kept growing along with the number of people we had to see. Harley has had to have three operations so far and I’m keeping my fingers crossed he won’t need any more.  Waiting for Harley to come out of theatre is one of the most stressful things me and my husband have ever had to do.

    I tried to go back to work but we had so many doctors appointments and that first winter Harley was so poorly he had to go in to hospital with several chest infections it just seemed impossible.

    I got told about a group for parents with children with additional needs and starting going.  I had finally found a world we fitted in too.  They told us about benefits we could get and other groups we could go to and slowly I started to understand this world that we had been catapulted into. I trained with the group and now I’m a volunteer befriender, I support other parents of children with additional needs it has given me more confidence and I love helping other people so much.

    Harley is three in December and I have finally realised that I have a child with a disability.  We still don’t know the extent of his problems and I have heard the phrase “wait and see” so often that I am considering changing my name by deed poll to it.  We still see a lot of doctors and he is going to have more tests over the next few months so we are hoping to start getting some answers soon and a diagnosis if there is one.

    Life is still hard and I don’t see that changing for the foreseeable future.  We have good and bad days and sometimes I still cry over the pregnancy I never had, the fact that my body failed me and the perfect healthy baby that we all want.  After everything I have an amazing little boy who is in every right a modern day miracle and I wouldn’t be without him – he’s my cheeky monkey.


  3. Guest Post

    July 15, 2011 by Lauren

    A huge welcome to our first guest blogger!

    Learning through Play

    A Toddler’s Journey

    By Laura Hardy

    Play assists learning just as a child learns to play.  Children learn about various different areas of ability through play, for example learning new words (language) about the world they live in (cognitive) how to behave in an acceptable way (social) how to recognise and control emotions and feelings (emotional) and also co-ordination and balance (physical.)

    There are four main types of play for children: solitary play, parallel play, associative play and co-operative play.  As the child grows and learns more about how to play they will work their way through these types of play until they are capable of all four of them.

    Solitary play is the names given to the type of play that a child does between birth and two years of age (all ages given are typical ages) where for the most part a child will play alone.  They require guidance and encouragement from other people, for example to know that they have to shake a rattle or squeeze a squeaky toy, but at this age their energies are concentrated on learning as much as they can from the world so will be happy in their own company experimenting with toys and household items as well as watching how other people play and copying to the best of their ability.  They will however be able to play simple games such as peekaboo and clapping games (patti-cake) and “action rhymes” such as “row row row your boat” with adults and other children once they have developed their co-ordination.  Acting out these rhymes and demonstrating what rattles, how mirrors work and blocks encourages the development of hand eye co-ordination and also motor skills to pick up blocks and shake rattles.  Whilst they sit and observe how other people play they also learn about the world by identifying people’s roles in the world and also how people play and act around other people.

    Parallel play is usually developed by two to three years where children become more aware of other children around them.  At this stage they will happily play “alongside” or near to other children, however it is very typical for them to be reluctant to share or play a game with another child, such as racing cars which requires the children to engage with each other and be capable of understanding the complexities of a two plus player game.  It teaches a child to behave in a socially acceptable way with other children and about sharing whilst learning about the world around them by playing with cars on a mat where the road is printed on and feeding dolls or soft toys.  By watching how other people act around them they are identifying what is appropriate and what isn’t so it is paramount at this age that children still receive guidance from people around them, such as carers, parents, friends and older siblings and that rules and guidelines and enforced so the children aren’t getting mixed messages about what is play and what is “naughty behaviour.”

    Here at this development stage it is good to encourage children to share and play alongside each other without conflict however, children not sharing and protesting to other children playing near them is very likely to happen.  When this happens it is important that it is explained to the child that sharing is “nice” (“sharing is caring”) and that it is ok for another child to play near them and this is consistent then there is no reason that the child won’t develop to the right “timescales”.

    Associative play requires skills associated with three to four year old’s and again at this stage they are still learning to play co-operatively with each other.   They will by now have moved on from just observing how their peers play and begin to copy and replicate how and what they do.  It could appear that the children are playing together fi there is some sort of interaction between the toys and characters however this would be very advanced.  Here they will learn what is acceptable of them and about sharing and respecting other children’s play space and also how to act if the child they are playing near gets upset if they perceive their game to have been interfered in.

    Co-operative play is the final stage of play development when a child can now play with other children in the same games.  This is when games such as car races and playing families for example start to appear during play time.  By now a child has the social skills to “read” a situation and join in appropriately to the game and the emotional skills to play with another child whilst demonstrating a high level of physical co-ordination to join in appropriately.

    To summarise, as children grow, they evolve from watching people play and how they act in certain situations, to start to mimic what they do in play, eventually reaching a stage where they are putting the events into their own perspective and by mixing that with their own interpretation they learn how to play both alone and with others and with children and adults alike.


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